National Dementia Pathway themes |
"PREVENTING WELL (Risk of people developing dementia is minimised)" |
DIAGNOSING WELL (Timely accurate diagnosis, care plan and review within first year) |
"SUPPORTING WELL (Access to safe high-quality health and social care for people with dementia and carers)" |
"LIVING WELL (People with dementia can live normally in safe and accepting communities)"
|
DYING WELL (People with dementia die with dignity in the place of their choosing) |
TRAINING WELL |
Minds & Voices strategy |
Before diagnosis promoting awareness, challenging myths, a call for transparency |
At the time of diagnosis - positive language and hope through research |
Post diagnosis - services to fit us rather than us having to fit services |
The future - ongoing support that is not time-limited'
|
|
|
DAA priorities and identified gaps |
Prevention: Public Health promotion
|
Improve early identification and accurate diagnosis
|
Establish a post diagnostic pathway of support
Carer’s support |
Have a positive campaign about living with dementia
|
|
|
Series of statements here for services to populate– see BMS as an example below
WE WILL |
We will
Work to improve awareness and understanding of the factors that increase the risk of dementia and how people can reduce their risk by living a healthier life
Work with professionals to increase the uptake of annual NHS Health Check for people over the age of 65 and for earlier age groups there is education around risk factors and self-help
"what’s good for your heart is good for your head" campaign.
Work with professionals to increase increase the uptake of health checks for people with learning disabilities.
Understand local Public Health data to target interventions aimed at risk factors e.g., obesity, alcohol, deafness
Increase opportunities to address social isolation and loneliness through social prescribing etc
|
We will:
Work towards a target of everyone receiving a formal diagnosis in a timely manner (BMS)
Provide a personalised approach to assessment and diagnosis with shared decision making
Ensure that diagnoses are delivered in a way that recognises the impact on the person and their carer, their needs and that full follow up support is offered tailored to individual diagnosis/needs
Work to ensure that the diagnosis process is clear and transparent (information beforehand) to people and involves no more professionals or appointments than necessary (BMS)
Work together to explore alternative diagnostic pathways, for example using other professionals and tools such as DIADEM
'Work together to address bottlenecks in the current pathway
Develop clear, accessible information to ensure people receive timely, appropriate support
Ensure a 'safe travel' from the point of diagnosis and throughout
Ensure that people affected by dementia design and participate in post-diagnostic support
'Provide proactive, personalised support with a named coordinator
|
We will
Ensure people with dementia are in the driving seat of shaping and developing services, learning and research in York
Promote participation in research with and alongside people with dementia rather than ON people with dementia
Improve access to support and develop peer support options delivered by people living with dementia
Offer more choice and control by expanding personal health budgets for people assessed as being eligible for care
Build on 'discharge to assess' and Home First approaches to prevent unnecessary long stays in hospital which could lead to worse outcomes and increase someone's long-term needs
Monitor and share the progress of new technology and the ways it could support people living with dementia and their carers
Provide seamless holistic support that is easily accessible with no thresholds or time-limit Refine data on people with dementia to inform planning and commissioning of high-quality services Ensure that people with dementia have a single digital health and care record that is accessible to all professionals involved in their care. This must include advance care planning
|
We will
Develop family support (wider than just carers) and develop more support for working age adults to support them in employment'
Work with employers to emphasise the importance of supporting and valuing carers of people living with dementia in employment
Ensure people with dementia are not discriminated against because of their diagnosis
Establish a network of peer groups of people with dementia across the area
Start the dementia conversation and maintain an open dialogue with people living with dementia and their supporters throughout the life of this strategy and beyond'
Challenge the disabling language, attitudes and environment that impede the lives of people living with dementia
Develop dementia awareness and intergenerational projects in schools |
We will
Develop training and awareness around the importance of advance care planning and end of life care
Improve and promote information advice and guidance to enable people to make early and informed decisions around mental capacity, planning for the future and end of life care
Work to challenge the social and professional stigma and nervousness around death and dying
|
We will
Provide a learning and development framework that meets the learning needs of health and care professionals regardless of role, position, or experience
Review the training and development offer to independent sector care staff and work with providers to assess training and development needs
Ensure that people with dementia are involved in leading and developing all dementia learning and development across the York area.
We will provide opportunities for everyone with dementia to answer questions about the impact of their diagnosis amongst peers.
|
Principles |
Hearing patient voice, co-design, and person-centred approaches to improvement
Our we will statement include both people with dementia and carers…. |
|
|
|
|
|